Comments for type1demystified.org

Comment on First day jitters. by Remain calm and schools: children help us fight the first day of the jitter | Uncategorized | Articles about Career Training !

Sat, 14 Aug 2010 07:01:25 +0000

[...] First day jitters. | type1demystified.org [...]

Comment on Amusement park rides. by Kim Green

Kim Green — Thu, 29 Jul 2010 14:47:02 +0000

I love “we go to amusement parks, although I am not amused”…so funny and so true! I hear you… I am having a rough few weeks with all of it myself. xoxo

Comment on Amusement park rides. by Is there any chance that I have diabetes type 1? | Diabetes Mellitus Information

Thu, 29 Jul 2010 07:25:22 +0000

[...] Amusement park rides. | type1demystified.org [...]

Comment on Amusement park rides. by Martie

Martie — Thu, 29 Jul 2010 04:03:42 +0000

Great article and so timely since we are also heading to Six Flags – tomorrow in fact. (Well, later today but I need to sleep first.)

Comment on About by Janet

Janet — Wed, 07 Jul 2010 21:26:04 +0000

This is a fantastic, informative blog.

Comment on What’s in a name? by Janet

Janet — Wed, 07 Jul 2010 21:15:59 +0000

Amen.
This is so frustrating. I get asked all the time when my son will “outgrow” his diabetes, or why I’m letting him have a cookie if that’s what caused the condition in the first place. I wish the two Types had entirely different names.

Comment on Type 1 makes everything more difficult. by Janet

Janet — Wed, 07 Jul 2010 21:12:22 +0000

What a great blog!
My son Max was diagnosed with Type 1 just after his 4th birthday. He’s almost 10 now, and we’ve travelled extensively since his diagnosis, including 6 weeks in France when we were still using syringes (allow lots of extra time at the airport when you’re carrying 200 needles). I check Max’s blood sugar in the night regardless of where we are, but travel is certainly made more complicated by the sheer amount of supplies we need to bring, as well as mapping out the nearest English-speaking hospital, and carrying a translation for “My son has diabetes/low blood sugar” in whatever language necessary.

Comment on Our diagnosis story. by Mamabear

Mamabear — Sun, 09 May 2010 23:40:24 +0000

When my son was diagnosed 20 years ago, I was in complete shock. I lost about 25 pounds due to the stress. My husband didn’t think that it was a big deal, and all of the care fell to me. In those days (1980′s), the glucometer was a big machine. You had to put a hanging drop of blood on the strip, put it in the machine, and wait for one minute. Then you wiped off the blood and put it in for another minute. Often the machine would say, “Not enough blood”, and we would have to do it again. Glucometers have come a long way! I am still waiting for the cure that the doctors said would be a reality by the time he was 21. NOT!
My son is 27 years old now, and he still has to struggle with this terrible disease every day.

Comment on Type 1 makes everything more difficult. by Jessica

Jessica — Wed, 14 Apr 2010 17:26:46 +0000

Love it Leslie!! Well written!!

Comment on Thanksgiving. by nannie

nannie — Wed, 07 Apr 2010 11:12:13 +0000

[...] Chad & Stephanie Meiler and her Nannie Judy Pitmon from Durant were all in attendance. …Thanksgiving. | type1demystified.orgHe loves going to Nannie and Papa's house to see his Uncle who will be visiting and spend … There [...]

Comment on No ‘getting off’ insulin for us. by basal insulin

basal insulin — Mon, 05 Apr 2010 13:55:48 +0000

[...] requires a subtle modification of insulin properties – provided by introducing certain mutations.No getting off' insulin for us. | type1demystified.orgOne type that gets taken every 24 hours is called a BASAL insulin. … They have the basal insulin [...]

Comment on Mistrusting your own judgment by Leslie

Leslie — Fri, 12 Mar 2010 16:02:14 +0000

Thank you Julie.

Comment on Mistrusting your own judgment by Leslie

Leslie — Fri, 12 Mar 2010 16:01:57 +0000

Thank you for reading and responding Kathy. We do treat the feeling and not the number, that is great advice. We do try to get my son to ‘feel’ his feelings because it is his disease and he is the expert. Diabetes stinks for both kids and adults.
Leslie

Comment on Mistrusting your own judgment by JoesMom

JoesMom — Fri, 12 Mar 2010 02:55:44 +0000

Nicely nicely said. My son is 17 and has T1 Diabetes. Not a day goes by that I dont wish I had it instead of him …

Comment on Mistrusting your own judgment by Kathy

Kathy — Thu, 11 Mar 2010 21:06:03 +0000

I soooo wish your son did not have to think like this already. The D will throw even us grownups for a loop! I wish I could say it will get easier, but there are numerous times when the same thing has happened to me or someone I know.

I hesitate to offer advice, but one thing I’ve learned over the years is to treat a low regardless of what the meter may say. Assuming someone is in otherwise good control, even if the meter says 100 it is never wrong/bad to treat if you feel ‘off’. Sometimes the level is dropping so quickly it won’t be caught by a fingerstick–you could be at 50 five minutes later if it’s a bad low. I always check every hour for a while afterwards, to make sure there’s no rebound high.

Meters are great but it is good to know how you feel. I’ve had lots of low/high symptoms confirmed by CGMS and fingersticks, even after 25+ years, so it’s important to trust your body too. The out-of-nowhere ones are scary but hopefully quite rare.

Hang in there (:-)

Comment on What’s in a name? by Michelle

Michelle — Thu, 11 Mar 2010 17:38:09 +0000

I am thrilled to have stumbled onto this post! I was very aggravated with the so-called “ALL ABOUT” Diabetes episode with Dr. Oz and Oprah. They never even mentioned children living with it; also Dr. Oz mistakenly said that Type 1 is hereditary. Um…no, that’s not always the case. I am resentful at all of the focus always being put on Type 2. Those people have the luxury of changing their habits to possibly even become disease free. Not my child.

Comment on What’s in a name? by Lynda

Lynda — Mon, 08 Mar 2010 02:19:52 +0000

I really enjoy reading your posts. It is so frustrating at times trying to explain diabetes and that some people just don’t “get it”. My daughter was diagnosed 2 years ago at the age of three and I seem to be repeating myself…but until you eat, sleep and breathe this disease you will never understand it.

Comment on What’s in a name? by type cases

type cases — Fri, 05 Mar 2010 08:07:30 +0000

[...] Website. Anti-spam word: (Required) To prove you're a person (not a spam script), type the …What's in a name? | type1demystified.orgThings are happening in a person with Type 1 diabetes body that stop the production of … All cases [...]

Comment on 504 Plan by fech - StartTags.com

fech - StartTags.com — Thu, 04 Mar 2010 16:42:04 +0000

[...] Saturday night and that's all I have to say on that subject. The glaringly obvious. No keen insi…504 Plan | type1demystified.orgAccording to the Office of Civil Rights a 504 Plan is as follows: … 1Meghan Fech @ 2009-8-17 [...]

Comment on Me? An expert? by Leslie

Leslie — Fri, 19 Feb 2010 14:27:35 +0000

Thanks so much Mamabear! I truly appreciate you reading and commenting. Insulin is life support, keeps our kids alive. It’s not a choice. Thanks again!
Leslie